Emilie's Latest Visit to the Doctor 7-24-09

We went to see the surgeon and Emilie's medical doctor yesterday.

The good news about Emilie is that she is a tough girl, and she wasn't going to have anyone touching her. The bad news is that this made it impossible to determine what her eye pressures were. The surgeon did agree that Emilie's left eye does look worse again, or at least not as good as it did right after surgery. The left eye continually looks like it is struggling. The did a preliminary eye test and Em's left eye just acts like it can't see at all. Her right eye is doing well, it can follow objects and is not very cloudy at all. Most days you can see her iris and pupil, it seems to be doing great.

The tentative plan for now is to put Emilie under anesthesia on the 19th of August and then check the pressures on the right eye. If the right eye has normal pressures, then the surgeon will operate on the left. The left eye has already had a trabeculotomy on both sides of the eyes, so it looks like now that we are headed for shunts-ville. A shunt will be placed in her left eye when ever it is operated on. (If not in August, then soon after.)

Either way, we have two surgeries remaining: the interior trabeculotomy of the right eye, and the shunt in the left eye. I hesitate to really discuss what the medical doctor discusses if that left eye doesn't respond, but needless to say words like "transplant" were thrown around. Kasey and I will just keep praying for better results so we don't have to reach that point.

Lastly, what I consider some good peices of news. The doctor gave us the number of the developmental agency that will help us make our home better equipped for Emilie so that when she walks and reads and plays that we have all the toys and equippment necessary that will adjust to her needs. We will call them after we get through this August surgery. Emilie will also be measured for glasses, and will start wearing them soon after, which is kind of nice for us, because if the doc can locate glasses for her, then we can surely locate sunglasses (which she desperately needs). That and I think the little one will look pretty darn adorable in a pair.

Keep the prayers coming if you will. And we will let you know in 3 weeks how the surgery goes...


Ashley said...

Good vibes are being sent your way. Hang in there, girl! Let us know if you need ANYTHING!

genderist said...

We're always glad to hear the reports!